Living With Parkinsons

  Niagara Ontario  Canada

Blog

This is where to find local and international Parkinson's news. To receive periodic Niagara focused news by email, signup to Parkinson Niagara News.

Anyone with an interest in Parkinsons Disease that lives and/or works within the Niagara Peninsula and would like to write periodic articles are welcome to contact us.

Please note:  Any medical information published on this website is not intended as a substitute for informed medical advice and you should not take any action before consulting with a health care professional. For more information, please read our Terms of Service.

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Parkinson's research turns personal for 'Brain Storms' author

Posted on November 3, 2015 at 1:25 PM

As a science journalist, Jon Palfreman has gone deep on topics ranging from autism to climate change... winning big awards such as the Peabody for his work along the way.  But his latest subject, chose him.  Jon Palfreman has been immersed in the world of Parkinson's disease since his own diagnosis, just over four years ago.  Listen to radio interview.

Free Webinar: Building a Care Partnership: Supporting a Loved One with Parkinsons Disease

Posted on October 29, 2015 at 2:00 PM

Caregivers offer critical support throughout a loved one’s journey with Parkinson’s disease. They are a major part of any care team, helping to make adjustments to daily life and adapt to new routines. In this webinar, we will explore how caregivers can help manage a friend or family member’s health after a Parkinson’s diagnosis.  Read more & Pre-register

Depression: not a normal part of aging

Posted on October 29, 2015 at 1:25 PM

Health problems, reduced income and the death of a partner or loved one are just some of the difficulties often faced in older age. With this in mind, it is perhaps unsurprising that around 7 million American adults aged 65 and older experience some form of depression. What is surprising is that depression among seniors is often overlooked and untreated.  Read more.

Possible new treatment for neurodegenerative diseases found

Posted on October 29, 2015 at 1:05 PM

Researchers at the University of Liverpool have found that a well-established anti-epileptic drug could also be used as a treatment for neurodegenerative diseases.  Neurodegeneration involves the progressive loss of nerve structure and function and is a common characteristic of several conditions, including Parkinson's, Alzheimer's and Huntington's. Such diseases are presently incurable.  Read more.

Electric 'noise' treats Parkinsons symptoms

Posted on October 28, 2015 at 11:40 PM

A portable pocket-sized stimulation device is being tested on patients with Parkinson's disease in the hope that it will alleviate balance problems associated with the disease.  See Video.

Blood-based biomarkers for early detection, diagnosis and staging of Parkinsons disease

Posted on October 28, 2015 at 11:25 PM

A blood test that can accurately detect early-stage Parkinson's disease and differentiate it from later stages of the disease has been developed by a group of researchers. The test can also distinguish Parkinson's from other neurological (Alzheimer's and multiple sclerosis) and non-neurological diseases (breast cancer).  Read more.

Scientists map Parkinsons spread in brain

Posted on October 28, 2015 at 2:20 PM

A new study maps the path Parkinson's takes as it spreads from affected to healthy tissue in the early stages of the brain-wasting disease.  By comparing scans of people affected by the disease and healthy counterparts, a new study has mapped the early stages of Parkinson's disease progress in the brain.  The results should increase our understanding of how Parkinson's disease spreads, say researchers from McGill University in Montreal, Canada, who report their findings in the journal eLife.  Read More.

This Woman can sniff out Parkinsons Disease

Posted on October 28, 2015 at 1:35 PM

A 65-year-old Scottish woman has a unique ability that can revolutionise the way Parkinson's is diagnosed: she can sniff out the debilitating disease.  Read more.

Aquatic Exercise benefits people with Parkinsons.

Posted on October 28, 2015 at 11:45 AM

People with Parkinson’s disease that exercise regularly move and maintain balance better than those who do not. Water boasts unique properties that enable it to be used for both therapy and fitness, especially for persons who cannot comfortably move on land, as is often the case for people with Parkinson’s. In water, the fear of falling evaporates.  Read more.

Public Consultation - Physician Assisted Dying

Posted on October 6, 2015 at 3:35 PM

The Supreme Court of Canada decision with respect to Physician Assisted Dying (Carter vs. Canada, Feb, 2015) has prompted the Government of Canada to consult with Canadians for the purpose of drafting legislation.  Participation by all Canadians, including those who are impacted by Parkinsons, will be valuable and used to help shape new federal law. The consultation is being overseen by a panel that is external to the Government of Canada.


Canadians may share their views by:


1.  Sending a formal submission no later than October 11, 2015, or;


2.  Completing an online survey by November 1, 2015.


For further information, see official website.

Exercise and Parkinsons Disease

Posted on September 10, 2015 at 11:05 AM

Aside from working with your doctor on an ongoing plan primarily involving medications, one of the most important things you can do is exercise. Many people cite swimming, walking and yoga as favorites. The universal benefits of exercise in helping everyone feel better and improving overall health are well-documented. There is evidence that exercise may hold specific benefits for people with Parkinson's in staying active and relatively limber, and improving balance and motor coordination. Read more

FREE Webinar - Exercise & Parkinsons - September 14, 2015, 2pm   See Events page.

Welcome to Living With Parkinsons

Posted on September 1, 2015 at 5:05 PM

 

We're back from a one year sabbatical to re-evaluate our accomplishments and determine if there is a future for these services.  During that time, we continued to maintain the Parkinson Niagara website.


After much consultation and consideration, we have concluded that after more than five years of helping our Niagara neighbours, the value to communities across Canada will increase as the Parkinsons community continues to expand. As such, our services will continue and with change.


The primary change is our name.  We have rebranded as "Living With Parkinsons" to reflect a growing need for these information services across Canada.  The name, "Parkinson Niagara" will still be used but less frequently.  The domain name parkinsonniagara.ca will still direct you to local Niagara resources and contact information.


The second immediate change is our email newsletter.  It has also been rebranded with the new name and is now referred to as the "Niagara Ontario Edition".  In addition, we changed up the formatting to a new appearance which is much cleaner and easier to read.


The third change is that the website "News" page is now called "Blog".   It will still be the place to find news about Parkinsons from around the world and what's happening with us, using a blogging format will open up doors for us to invite guest writers with various expertises to write to the Parkinsons communities.  (Note:  At the moment, we are still using a relatively dated website and blogging system.  That will be changing in the next few months. We hope to launch the new web format by December, 2015.)


The fourth change will be how we operate.  Since this project began in early 2010, it has been managed and underwritten by the founder.  There is growing demand for these services within and beyond where it began - Niagara, Ontario.  The anticipated growth and changes of technologies to accommodate the growth will result in increased costs.  With that, we are now actively seeking commercial sponsors so that this service can continue to be available free of charge to end users.  You will begin to see limited ads appears in all of our Internet services - website, newsletters, social media.  We never wanted to commercialize this adventure, but it has become necessary to keep it going.  We will be limiting the amount and styles of advertising so to minimize the intrusiveness to readers.


With this in mind, we encourage our users to patronize our sponsors and tell them that Living With Parkinsons sent them.


The fifth change is an addition.  You should have noticed the new photo that graces the top of our website, email news and social media services.  This image evokes much of what we believe.  Debilitating conditions are not just about the patient.  They impact everyone that is in the patient's circle of influence.


The message in that image is, "Knowledge is Power And Hope is Everything.


"Living With" delivers information.  Used correctly, it becomes a powerful tool to the user and empowers them to maximize their quality of life.  As they are empowered to do and be better, they have HOPE!  Hope for a better life as they live through their condition.


It is our hope that what we do continues to help empower our neighbours and communities.


We would like to thank all of our viewers for following us since 2010. Please stay around for the emerging new chapter in the life of this adventure that we now call, Living With Parkinsons!

OTN returns to Niagara

Posted on July 8, 2015 at 5:40 PM

July 8, 2015 - St.Catharines, Ontario - Today the Hotel Dieu Shaver Health and Rehabilitation Centre announced that they have received additional funding from the Hamilton Niagara Haldimand Brant Local Integrated Health Network (HNHB LHIN) to expand its Ontario Telemedicine Network (OTN) program to accommodate specialized populations.  Once again, some Parkinsons patients will be able to participate in remote consultations with their neurologists that are located outside of Niagara.  Patients are advised to contact their neurologist to book an appointment.

See Press Release.

Vitamin D Levels Linked to Parkinson's Symptoms

Posted on April 1, 2014 at 8:25 PM

Better thinking, mood associated with higher levels, study finds


WEDNESDAY, Jan. 22, 2014 (HealthDay News) -- Higher vitamin D levels are associated with better thinking and mood in people with Parkinson's disease, a new study suggests.

The finding may lead to new ways to delay or prevent the onset of thinking problems and depression in people with the progressive neurodegenerative disease, the researchers said.

Their analysis of nearly 300 Parkinson's disease patients revealed that higher blood levels of vitamin D -- the "sunshine vitamin" -- were associated with less severe physical symptoms, better thinking abilities and lower risk of depression.

This link was especially strong in patients without dementia, according to the study in the current issue of the Journal of Parkinson's Disease.

See Full Story

Parkinson Niagara April News published

Posted on April 1, 2014 at 5:50 PM

The April edition of the Parkinson Niagara News was published today.  If you don't see it in your inbox, check your spam box!  You can also see it in the archives - go to the Niagara Resources page!  Don't miss future issues; visit the home page and look for the link to subscribe now!

Parkinson Support Group meeting

Posted on January 18, 2014 at 4:10 PM

The PSC Niagara support group for Parkinsons patients and caregivers resumes on Wednesday, January 22 at 1:30p in St.Catharines.  For details, see the Events calendar.

Parkinson Niagara News January 2014 issue published

Posted on January 18, 2014 at 4:10 PM

The January 2014 edition of Parkinson Niagara News was published today.  If you did not see it, see the archives on the Niagara Resources page.  Don't miss the next FREE issue, subscribe today!  Visit the Parkinson Niagara home page and look for the subscription link at the top of the page. 

Steve Ludzik talks Parkinsons on Hockey Night in Canada

Posted on January 18, 2014 at 4:05 PM

Retired Canadian Hockey player, Steve Ludzik, St.Catharines M.P. Rick Dykstra and Carolyn Bergeron, Vice President of Clinical Services at the Hotel Dieu Shaver Hospital will be interviewed and talk about Parkinsons during the half time intermission on Hockey Night in Canada, Saturday January 18.  The game begins at 7pm on CBC-TV.

Charity hockey game sets fundraising record

Posted on August 11, 2013 at 1:55 PM

11Aug13 -  The fourth iteration of Hockey Night in St.Catharines set a record by raising $151,205 for the United Way and the Parkinson's disease program at the Hotel Dieu Shaver rehabilitation centre.  Read Full Story.

 


Parkinson Niagara News

Posted on August 1, 2013 at 1:30 PM

August 1, 2013 - Parkinson Niagara published the pre-launch issue of it's new "Parkinson Niagara News".  The free monthly email newsletter (e-News) will highlight events, news and resources that are of interest to Parkinsons stakeholders within the Niagara Peninsula of Ontario Canada.  The first official issue will be published on or about Labour Day in September.


Visit the Parkinson Niagara home page to signup for a free subscription.  An archive of previously published editions can be seen on the Niagara Resources page.


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