Parkinsonism (also known as Parkinson's syndrome, atypical Parkinson's, or secondary Parkinson's) is a neurological syndrome that affects the brain's dopamine producing nerve cells. It is characterized by tremors, hypokinesia, muscle rigidity, postural instability and changes in speech and gait. After diagnosis, treatments can help relieve symptoms, however, there is no known cure. Approximately 93% of those diagnosed suffer from the chronic neurodegenerative form called Parkinsons Disease.
About Living With Parkinsons
This website dedicated to
Arthur James Robinson
January 3, 1929 - April 18, 2017
This website was developed after Arthur J Robinson, of Port Colborne,Ontario, and his family encountering great difficulty in locating local Parkinsons support services. After searching for more than a month, they located the Niagara chapter of Parkinsons Society of Canada. By meeting others that were living with Parkinsons, additional valuable support services came to light. Many were used that helped to maximize Mr Robinson's quality of life and that of his family.
During the first few months of meeting new friends living with Parkinsons, it became obvious that nearly all of them and their family support network had also encountered many challenges in finding local support and resources soon after the diagnosis. The local medical establishment did not appear to have a reliable resource network for their patients, therefore, Mr Robinson's son moved forward to change that and help other Niagara residents find the help they needed.
This project officially launched as Parkinson Niagara on June 23, 2010 and has become the primary online resource in support of the Niagara residents that are living with Parkinsons.
In January 2013, the project was rebranded as "Living With Parkinsons".
While this site will continue to focus on the personal needs of Niagara residents, it will become part of an expanded website that is being developed to serve other communities in Canada. Regional websites will provide resources and information for those respective local communities.
Mission: To be the online community of choice for those who are living with Parkinsons Disease.
Purpose: To curate and publish information and resources that will be of value to Parkinsons patients, care givers and other stakeholders.
Scope: To offer services to those living and/or supporting residents of their respective local and regional communities in Canada.
Method: See Organization & Management